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Hope Dignity Awareness
Huntington’s Victoria is the leading specialist service that supports individuals impacted by Huntington’s disease.

Research Participants Wanted

Would you like to join a research register?

Huntington's Victoria collaborates with a range of partner agencies in the work of Huntington's Research Group Victoria. If you would like to find out more about this research group, please read information here.

One of the collaboratrs, Monash University provides opportunites to join a Research Registry to participate in any future research studies in Victoria.

Interested? Please contact the Recruitment Coordinator on 9905 3958 or get in contact via their Facebook page


Apathy in HD Study

Monash University is looking for individuals who have tested positive for the Huntington's disease gene, as well as those that are gene-negative, to participate in a research study.  This study aims to explore the way apathy (a loss of motivation) presents in people gene positive for HD and how it may be better measured. 

This study is made up of two phases.  Phase One involves completing a short 30 minute online survey about your health, activities and motivation.  Some people who complete this survey will be asked to participate in Phase Two of the study. This phase is optional and involves wearing an activity monitoring device for five days and attending Monash University Clayton Campus to complete some paper/pencil and computerised tasks.  This session takes 2.5 hours in total and you will be compensated $40 for your time.

Who is eligible to participate?

  • Men & women, aged 18 or over, who have tested positive for the HD gene, or those that are gene-negative with no family history of HD
  • Have no history of TBI, stroke or major psychiatric disorder

If you would like to receive more information about how you can participate in this study, please call Kelly Atkins on (03) 9905 1918 or email


Exercise and HD Study

Monash Univeristy is currently seeking people who are gene-positive for Huntington’s disease aged between 18 and 65 years for a study exploring the effect of an acute bout of moderate or high intensity exercise on brain activity in Huntington’s disease. We are looking for people to participate who are either pre-symptomatic, or have mild symptoms. The results of gene-positive participants will be compared with the results of those who are gene-negative.

This study is conducted over three sessions, and each session involves either cycling or resting for 30 minutes, and transcranial magnetic stimulation (TMS), which is a painless, safe, and non-invasive means of stimulating nerve cells in the brain. Muscle activity will be recorded from electrodes placed on the hand. In addition, participants will complete a series of questionnaires about physical activity levels and health.

This research is being conducted at Monash Biomedical Imaging centre in Clayton and involves attending three 3 hour sessions on separate days. Participants will be reimbursed $150 to cover their time and travel expenses.

Potential participants will be screened prior to their involvement in the study to ensure that they are eligible to take part. If you are interested in taking part, please contact Sophie Andrews at or please call (03) 9902 0481.

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