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Hope Dignity Awareness
Huntington’s Victoria is the leading specialist service that supports individuals impacted by Huntington’s disease.

News

  • Huntington's Volunteer Feature: Anish

    Fri 14, Jul 2017 Just in time for National Volunteer Week from May 8 to 15, we decided to interview one of our volunteers, Anish Saini, and share his experiences volunteering with us.

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  • Huntington's Client Profile: Liz

    Fri 14, Jul 2017 Liz accesses our Case Management Program and has been working with Case Worker, Victoria Comport since August 2015. During this time Victoria has supported Liz with a range of different aspects of herlife. We had a quick chat to both of them to get some insight into the program.

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  • Huntington's Awareness Month Wrap Up

    Fri 14, Jul 2017 Thank you to everyone who participated in the Inaugural Huntington's Awareness Month during May. Whether you hosted you own event, came along to Melbourne Town Hall or posted something on social media, you contributed to increasing awareness of HD.

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  • A note from the CEO's desk

    Fri 14, Jul 2017 As I sit at my desk to write this report, I cannot believe that we are already in July. I hope you are all staying warm over this winter period and drinking plenty of hot chocolate. Since our last newsletter HV continues to focus on improving services in order to continue to meet the needs of our community and implement strategies to increase overall awareness.

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  • Client Support Services Update

    Fri 14, Jul 2017 As you may be aware, the National Disability Insurance Scheme (NDIS), is a new Australia wide approach to caring and providing support for people with a disability. This long and anticipated introduction to the scheme is now being rolled out and expected to be in full transition across Australia by July 2019.

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  • Chronicles of Kylie: My thoughts on Assisted Dying Legislation

    Thu 13, Jul 2017 Some of you may be aware or have been following the forthcoming voluntary assisted dying legislation, which is scheduled to be introduced to the Victorian parliament as soon as next month. I thought it would be timely to devote some discussion to the issue which people often feel unconformable about discussing, that of death and the dying process.

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  • Chronicles of Kylie: Why the secrecy around HD?

    Thu 16, Mar 2017 I would sincerely like to thank my mother for not following a doctor’s advice.

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  • Chronicles of Kylie: Introduction

    Wed 22, Feb 2017 Hi there, my name is Kylie (or champagne Kylie to my friends). I will be writing a series of blogs for Huntington’s Victoria called the Chronicles of Kylie in which I will be sharing my experience with HD and providing advice for those impacted by HD. New blog posts will be posted fortnightly so keep an eye out!

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  • A note from the CEO's desk

    Wed 15, Feb 2017 Welcome to 2017 and I hope everyone’s New Year resolutions are still holding strong. For those of you who follow our Facebook page you will know that we ended 2016 with a flurry of activity and carried this on through to 2017.

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  • Huntington's Disease Awareness Month - May 2017

    Fri 10, Feb 2017 This May we are excited to launch our inaugural Huntington’s Disease Awareness Month.

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  • Huntington's Client Profile: Haylee

    Fri 10, Feb 2017 Haylee is a confident, lovely young lady who never allows her diagnosis to stop her from enjoying life.

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  • Huntington’s Victoria meets the requirements for the ACNC Tick

    Tue 03, Jan 2017 We’re pleased to report that Huntington’s Victoria has met all requirements for the Australian Charity and Not-for-profits Commission (ACNC) Registered Charity Tick.

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  • Huntington's Client Profile: Keith

    Fri 16, Dec 2016 Keith first linked in with our services by accessing our information program to find out more details on HD and what it meant for him. Now, a number of years later....

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  • A note from the CEO's desk

    Tue 27, Sep 2016 As the not-for-profit sector continues to evolve, Huntington’s Victoria is prepared to meet its commitment to building greater awareness of Huntington’s disease as well as improving the lives of those directly impacted by the disease.

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  • Carer Profile: Michael

    Mon 26, Sep 2016 With Carer’s Week fast approaching (16-22 October), it is timely profile one of our wonderful carers. I would like to take to opportunity to thank Michael for very kindly sharing his story.

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  • Huntington's Champion feature: Brian

    Tue 06, Sep 2016 Hello and please let me introduce myself to you! My name is Brian, I’m a 39 year old father of three, who is lives and works in Corowa, a small town down on the Victorian and New South Wales border west of Albury.

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  • 2016 National Conference Wrap-Up

    Thu 01, Sep 2016 This was a unique gathering that brought together the HD community including recognised medical experts, researchers, HD champions and community supporters from across Australia.

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  • Huntington's Champion feature: Paul

    Fri 01, Jul 2016 Paul has been a wonderful supporter of Huntington’s Victoria for a number of years attending our events as well as being a community advocate promoting awareness of the disease through his networks.

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  • Huntington's Champion feature: Maurice

    Fri 01, Jul 2016 While Huntington’s disease has been a devastating presence in Maurice's family, the Clyde North resident is determined to meet the challenges head on.

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