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Hope Dignity Awareness
Huntington’s Victoria is the leading specialist service that supports individuals impacted by Huntington’s disease.

Huntington’s Victoria (HV) is a not-for profit organisation that was formed by several Huntington’s disease (HD) community members in 1973 to provide a safe, trusted space to receive support. Since this time, it has continued to evolve from a community-run entity into a professionally-run organisation. The community-focused collaborative nature of the organisation, in association with the complex nature of the disease, has inevitably led to Huntington's Victoria being the first point of contact for those seeking support.  

HV is the only specialist service in Victoria that supports and assists people impacted by HD. We aim to improve the quality of life for all people touched by HD in Victoria by connecting families to the vital support and services they need.

Huntington's Victoria provides access to expert staff that assist in the navigation of the disability service sector, provide relevant information and connect people with respite and support services. We also work with Australian and global healthcare professionals, disability service providers and academics to increase awareness and understanding of HD, as well as the impact it has on individuals, families and communities.

More information about our services


To sustain a high quality of life for people affected by Huntington's disease, their carers and their family, while encouraging research towards a cure.


All people affected by HD live meaningful and hopeful lives as valued members of the community with equitable and timely access to resources and empowered choices for care and support of the highest quality. 

Our Values


We engage others in a respectful, fair and ethical manner, fulfilling our commitments as professionals and employees. We ensure the highest degree of dignity, equity, honesty and trust.



We show pride, enthusiasm and dedication in everything that we do. We strive for the provision of a responsible and relevant service to our clients inclusive of the appropriate utilisation of resources. We accept professional responsibility for all our decisions and actions.



We consult and collaborate with other key stakeholders and respect the diverse knowledge and skills of our partners; working as a team we safeguard the best possible inter-professional interface with respect to client care.



We create opportunities for education and are committed to continuous development. We enable everyone to make knowledge-based decisions

Our Priorities

Service Delivery, Information, Advocacy, Research and Sustainability.

View Huntington's Victoria 2016-2019 Strategic Plan 


Accredited by the Australian Council on Healthcare Standards until 15/07/2017