General News
Discover the latest happenings in the Huntington’s disease community, from event updates to important news and developments.
Movement and Wellbeing in conversation with Alice Cornwall
Information and Awareness Newsletter July – Movement and Wellbeing in conversation with Alice...
HV Information & Awareness Newsletter – June 2025
Information and Awareness Newsletter June - Explore SKY 0515 Clinical Trial Updates on Falcon HD...
Huntington’s Victoria 2025 Events
Huntington's Victoria Upcoming Events Events UpdateHuntington’s Disease Awareness Month is just...
Information and Awareness Newsletter
Explore our Information and Awareness Newsletters, created to keep the Huntington’s disease community updated on health, wellness, and important developments while sharing stories and experiences from within the community.
Movement and Wellbeing in conversation with Alice Cornwall
Information and Awareness Newsletter July – Movement and Wellbeing in conversation with Alice...
HV Information & Awareness Newsletter – June 2025
Information and Awareness Newsletter June - Explore SKY 0515 Clinical Trial Updates on Falcon HD...
Information and Awareness Newsletter – May 2025
Information and Awareness Newsletter May - Huntington’s Disease Awareness Month 💙We’re proud to...
Research Updates
Stay informed with our Beyond the Lab series and Research Updates, where we share the latest findings, advancements, and insights in Huntington’s disease research, along with interviews from researchers and professionals.
Beyond the Lab – Episode 7 – A Conversation with Dr. Flaviano Giorgini
Beyond the Lab: In conversation with Dr. Flaviano Giorgini Episode 7 🚨 The 7th episode of our...
Beyond the Lab: Episode 6
Beyond the Lab Episode 6 🚨 The 6th episode of our Beyond the Lab interview series is now live! 🎉 ...
Beyond the Lab – Episode 5
Beyond the Lab Episode 5 🚨 The 5th episode of our Beyond the Lab interview series is now live! 🎉 ...
Clinical Trial Update in Australia:

The FALCON-HD clinical trial, led by Skyhawk Therapeutics, is now open for enrolment. The study is investigating whether a treatment called SKY-0515 can lower levels of the mutant huntingtin (HTT) protein and help slow the progression of Huntington’s disease.
Latest Headline from HDBuzz:
- Huntington’s Disease Clinical Research Congress 2025 – Day 3by Dr Rachel Harding on October 16, 2025 at 1:00 pm
Catch up on all the latest HD news from Day 3 of the Huntington’s Disease Clinical Research Congress in Nashville, USA.