Huntington's VictoriaHuntington's Victoria logo

Hope Dignity Awareness
Huntington’s Victoria is the leading specialist service that supports individuals impacted by Huntington’s disease.

Information Sheets

Basics of HD

A simple introduction to the cause, symptoms and who HD affects. 

Download Info sheet 1 - Basics of HD


Predictive Testing & Diagnosis 

An overview of the genetics behind HD and the difference between predictive testing and diagnosis of HD.

Download Info sheet 2 - Predictive testing & diagnosis 


Living well with HD

Tips on how you can manage the impact of HD by keeping body and mind healthy.

Download Info sheet 3 - Living well with Huntington's


HV Services

An overview of Huntington's Victoria's services and programs.

Download Info sheet 4 - HV Services


HD Specialists & clinics

List of HD specialists and clinics around Australia, information about specialist services and tips for making the most of doctors appointments.

Download Info sheet 5 - HD Specialists and Clinics


Examples of HD in everyday life

Specific examples that provide insight into how HD might affect someone's communication, thoughts and feelings in day-to-day life.  

Download Info sheet 6 - Examples of HD in everyday life


Talking to young people about HD

A guide for parents/older people on why, when and how to speak to children/young people about HD. 

Download Info sheet 7 - Talking to young people about HD


Thinking ahead: Useful tips

A list of tips to consider when planning for the future. 

Download Info sheet 8 - Thinking ahead: Useful tips


Supporting yourself as a carer

An overview of the role of carer and HD and simple strategies to maintain well-being as a carer. 

Download Info sheet 9 - Supporting yourself as a carer


Telling others about HD

A guide on what to consider before disclosing a family history of HD to others.

Download Info sheet 10 - Telling others about HD


Being young in a HD family

A simple guide for young people on the challenges of coming from a HD family and you can help yourself. 

Download Info sheet 11 - Being young in a HD family


Family planning options

An overview of the potential options for HD families/individuals who want to have children. 

Download Info sheet 12 - Family planning options


 Disclaimer: All information sheets and content available on this website have been developed by Huntington's Victoria and therefore are subject to the operation of the Copyright Act 1968. 

ACAH

Accredited by the Australian Council on Healthcare Standards until 15/07/2017

ACAH