Milestones

1972 — The first HD clinic in Australia was established by Professor Edmond Chiu and was located in Victoria

1973 — Australian Huntington’s Disease Association (AHDA Vic) was formed. This was the first in Australia

1981 — Opening of the first care centre for people suffering from HD and other brain related disorders in the world. It was known as the Arthur Preston Centre (now Arthur Preston Residential Services)

1993 — The gene for HD was discovered due to the research efforts of Nancy Wexler and her team

2004 — Establishment of the Huntington’s Research Group of Victoria (HRGV) which is the first designated research group with membership across academia and includes both clinical and community representatives.

2007 — AHDA (Vic) was successful in receiving state government funding to implement the first HD specific Individualised Support Packages

2008 — AHDA Vic re-branded and became Huntington’s Victoria

2011 — Melbourne played host to the World Congress on Huntington’s Disease. This has been the only time it has been held in Australia.

2013 — Huntington’s Victoria was accredited by the Australian Council on Healthcare Standards

2013 Huntington’s Victoria became a registered National Disability Insurance Scheme (NDIS) provider and was instrumental in the NDIS Pilot Program in Barwon

NDIS icon.

2016 — Official rollout of the National Disability Insurance Scheme (NDIS) in Victoria.

2018 — Huntington’s Victoria celebrates 45 years of service to its community

2019 — Exciting research clinical trials to have sites in Melbourne