19th February, 2020
Tickets will be on sale at a later date
Huntington’s Victoria (HV) is a not-for profit organisation that was formed by several Huntington’s disease (HD) community members in 1973 to provide a safe, trusted space to receive support. Since this time, it has continued to evolve from a community-run entity into a professionally-run organisation. The community-focused collaborative nature of the organisation, in association with the complex nature of the disease, has inevitably led to Huntington’s Victoria being the first point of contact for those seeking support.read more
5th December, 2019
The 8th annual ball was held on Saturday October 19 and was attended by 360 people including members of the Huntington’s community, researchers, specialists along with corporate and community supporters.
Huntington’s Victoria Chief Executive Officer Tammy Gardner said the night had been a great celebration and she thanked all the people who attended and donated vital funds.
“As I said on the night, fundraising is so vital to help us running the programs that make such a difference such as providing emergency assistance for families,” she said.
Ms Gardner said the highlight of the night had been seeing so many members of the Huntington’s community come together to enjoy themselves.read more
25th September, 2019
Huntington’s Victoria has backed the efforts of board member Dr Bronwyn Morkham to stop young people with disabilities going into aged care facilities.
Dr Morkham, who heads up the Young People in Nursing Homes National Alliance, this month appeared at a hearing of the Royal Commission into Aged Care Quality and Safety.
She told the Royal Commission that aged care was completely inappropriate for people aged under 65 with disabilities, including those suffering from Huntington’s disease.read more
3rd February, 2020
Huntington’s Victoria has welcomed a five year moratorium on the use of genetic testing in assessing applications for life insurance.
The moratorium, which was put in place last year, means that people are not required to disclose the results of a genetic test when applying for cover up to set financial limits.
However, applicants may still be asked about their medical history and any signs, symptoms or diagnosed condition they or their close relatives have.
Huntington’s Victoria CEO Tammy Gardner said the organisation strongly supported the moratorium and would be pushing for it to be turned into a permanent ban.read more
17th February, 2020
One of our HD Champions Kath, is holding a fundraiser for Huntington's Disease in March and looking for donations to go in the raffle. If you have anything you would be able to donate please contact Kath via her facebook here:...
Huntington’s Victoria is the leading specialist service that supports individuals impacted by Huntington’s disease