30th May, 2020
We are again, honoured and privileged to remember our community members that we have lost. Your life mattered and you will always be remembered.
Huntington’s Victoria (HV) is a not-for profit organisation that was formed by several Huntington’s disease (HD) community members in 1973 to provide a safe, trusted space to receive support. Since this time, it has continued to evolve from a community-run entity into a professionally-run organisation. The community-focused collaborative nature of the organisation, in association with the complex nature of the disease, has inevitably led to Huntington’s Victoria being the first point of contact for those seeking support.read more
16th April, 2020
Clinical trials of new drugs to treat Huntington’s disease that are taking place in Australia have been affected by the COVID-19 outbreak.
The pandemic has diverted many staff into frontline healthcare and will impact on the three trials being conducted by biotech companies Roche and Wave Life Sciences.read more
18th March, 2020
Huntington’s Victoria is continuing to provide services and supports to the community during the coronavirus outbreak.
HV CEO Tammy Gardner said the office remains open and all staff are focused on delivering the help and support that the community needs.read more
24th April, 2020
New figures reveal a growing number of younger people with Huntington’s disease are living in residential aged care in Victoria. The Australian Institute of Health and Welfare data shows in total there were 331 people with HD in residential aged care facilities across the country in June last year – 149 of those aged under 65. Victoria was the only state where the number of younger people increased from June 2018 to June 2019 (39 to 42).read more
Huntington’s Victoria is the leading specialist service that supports individuals impacted by Huntington’s disease