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Notice of Special General Meeting of Huntington's Victoria |
To all Members of Huntington's Victoria
Over the recent months, the Board of Huntington's Victoria have been reviewing and seeking advice about the Constitution of Huntington's Victoria. The current document is many years old, and is quite 'dated'. In fact, some aspects of the Constitution are simply no longer appropriate for an organisation with standing and resources of Huntington's Victoria. Accordingly, legal advise has been sought, and a new draft Constitution prepared. The Board would like to stress that the Constitution has not been materially altered, but has been updated and modernised from it previous form. A copy of the Constitution, showing all the changes is available to download at our website.
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Self-facilitated Support Groups |
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Do you come from a HD affected family?
Are you interested in setting up or running a support group in your area? or
Do you just want to be part of a support group?
If you answered YES to the above questions, register your interest now!
For more information, please contact Viv on 03 9818 6333. |
The Huntington's Disease Charity Gala Ball
On Friday 12th of October, Huntington’s Victoria in conjunction with dedicated community member Jess Wood will be hosting the Inaugural Huntington’s Disease Charity Gala Ball to help raise awareness of this condition. Huntington’s disease (HD) is a genetic condition that affects the brain which progressively worsens over time. HD is classified in the same group of neurological conditions such as MS, Motor Neurone Disease, Parkinson’s, and Alzheimer’s, however is no less devastating than these more commonly recognised conditions. HD has a wide spreading impact on a family as it affects multi-generations, with members currently suffering or have suffered this condition in each generation. There is no cure or effective treatment, and hence why your support in raising awareness of this condition is vital so we can continue to help those persons and their families affected by HD maintain the dignity, freedom, and quality of life they deserve whilst living with this disease.
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Meet and Greet!
If you are touched by Huntington's disease in anyway, come join the group for lots of fun, advice and support.
Where: Huntington's Victoria office
When: Tuesday, 22nd May 2012
Tuesday, 19th June 2012
Time: 7:00pm onwards
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Carers Support Group
A great opportunity to meet and reunite with other carers and the chance to discuss and share own knowledge and experiences in caring for someone.
Dates: 2nd May 2012
6th June 2012
Time: 11:00am
Where: Huntington's Victoria
RSVP: Glenys Johnson - (03) 9818 6333)
Download Carers Support Group 2012 Flyer for more information
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