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A diagnosis of Huntington’s disease presents numerous and complex challenges, not only for the person diagnosed, but also for their family, their friends, their work colleagues and their entire social network. There can be many and varied reactions to a diagnosis of HD. These can include a sense of melancholy, panic, frustration, helplessness, despair, guilt, and anger. The rarity of the disease can contribute to feelings of isolation, fear and anxiety, due to lack of information, and lack of knowledge and understanding by others. For partners and spouses, uncertainty about the future, the prospect of becoming a caregiver, and financial worries, may exacerbate a sense of sadness, loss and fear that can accompany the diagnosis. Friends, work colleagues and the person's wider circle of contacts may find it difficult to come to terms with the reality of the changes they observe in the person, and might not always know how to respond.
Find more information about managing HD
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