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Talking to Children about HD
Why Children Need to Know

When you were first told about HD, your first worries may have been for your children. You may have asked: How will my children cope if my condition progresses? What will I tell them? How will I tell them that I have HD? How will it affect their lives?

As a parent it is natural to want to protect your children from any undue distress. It is daunting and overwhelming talking to your children about your condition but some research has shown evidence that children cope better when parents openly discuss their illness. Children are perceptive and will pick up on any tensions within their own environment and will be less concerned once they are informed about and understand the changes within the family dynamics. There are also other reasons that you may want to consider when making a decision about whether to talk to your children about HD.

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How do I Tell my Children

At the best of times communicating with your children can be problematic let alone when you are contemplating discussing a health condition with them. The level of discussion you choose to have with your children will depend on their age, temperature and emotional maturity. We would suggest that discussion take place where the children are most comfortable and safe and with limited distractions in order to enable them to comprehend and participate in the conversation. Plan ahead and decide about the best way to deliver the information but keep in mind that even the most prepared people can’t control every situation. You can only do the best you can. Do not panic if things don’t go to plan. Your children will not be devastated by one discussion that doesn’t go smoothly. They will more than likely be appreciative that the discussion took place.

As a parent, you know your children best and know how to best deal with them in potentially distressing situations. You may already have your own strategies in discussing your condition with your children and we have also included below some practical tips to help you decide how to approach the subject with them.

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How to Deal with Children at Different Stages

Newborns, infants and toddlers

The biggest concern for small children is the disruption of their daily routine. They will not understand the concept of HD, but will be disturbed if you're away for a few days or are too tired to play with them. You must establish a new routine as soon as possible to accommodate your treatment and your children's needs. Friends and family may be able to assists you in this situation by offering extra attention and love to your children.

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