Huntington’s Victoria
Personal Information & Protecting Your Privacy

At Huntington’s Victoria we are committed to building open, trusting relationships so that people know:

Clients of Huntington’s Victoria

If you receive a service from Huntington's Victoria here are the things you need to know about your personal information:

• We do keep some personal information on all clients to whom we provide a service.
• We seek to ensure personal information is accurate, so the staff working with you will talk about your personal information, or in some instances, with a person who has the legal right to act on your behalf.
• Any personal information will be recorded on a Personal Confidential File, which is securely stored and can only be accessed by authorised staff.
• This Confidential file is a working tool that enables people providing your service to record details of your situation, assessments, decisions and the actions we undertake, for the purpose of professional accountability.
• Files and written records are handled within a strict security protocol to prevent unlawful access to them.
• We only use your identified personal information to ensure you get the best standard of advice, care and support in the circumstances that HD affects you.
• We will only make referrals and/or provide information to another service with your knowledge & agreement except in very exceptional circumstances allowed by law, where we have a duty of care to act in your best interests and we will discuss any exceptions as soon as possible.
• Whilst we do collate some statistics about our service for funding bodies and planning purposes, we will not use any of your personal information in any way that you can be identified by any person not involved in your care and support.

You have the right to check your personal information

• You do have a right to check the details of your personal information and if you believe it to be incorrect, to have it changed or deleted.
• You are encouraged to do this by talking with your regular social worker, as part of negotiating and reviewing your service.
• If after you do this, you are not satisfied with this approach, you can seek to access your personal information details, via a formal information access procedure.
• The first step in the formal information access procedure involves contacting the Chief Executive Officer via telephone, letter or direct appointment.
• The Chief Executive Officer will talk with you and explain the steps to be followed in the formal procedure.

Members of Huntington’s Victoria

If you are a registered Association Member, here are the things you need to know about your information:

• We keep some minimal information on our Register of Association Members, including your basic contact details and the length of time you have been a member and the current status of your membership.
• This information is only used to enable us to contact you regarding Association business and activities including sending the newsletter and informing you of events and the Annual General Meeting.
• The information on our membership register is not considered to be sensitive information, however only authorised staff will have access to your personal contact details and contact with you will always be moderated via those authorised persons.
• If at any time you wish to be totally removed from the Membership register please contact us and ask us to do this.

Website Users

• When you access information from our website www.huntingtonsvic.org.au no personal details of you or your contact information are collected or stored by the Association.

Our Privacy policy and procedures are subject to continuous review and improvement & your feedback is welcome.