Huntington's Victoria (HV) is a not for profit organisation funded by the Victorian Government and public sources. We are the only specialist service in Victoria to support and assist people affected by Huntington's Disease (HD).
We aim to improve the quality of life of all people touched by HD in Victoria by connecting families to the vital support and services they need, while supporting people affected by HD to live meaningful and hopeful lives as valued members of the community.
We provide access to expert staff that assist in the navigation of the disability service sector, provide relevant information and connect people with respite and support services. We also work with Australian and global healthcare professionals, disability service providers and academics to increase awareness and understanding of HD, as well as the impact it has on individuals, families and communities.
To sustain a high quality of life for people affected by Huntington's disease, their carers and their family, while supporting/encouraging research towards a cure.
All people affected by HD live meaningful and hopeful lives as valued members of the community with equitable and timely access to resources and empowered choices for care and support of the highest quality.
The key forcus for the organisation is:
- Provide quality services to those impacted by HD including clients, cares and family
- Support, understand and communicate high quality research that informs better care and leads to a cure
- Advocate on behalf of HD clients, carers and family to ensure high quality services and research
- Ensure Huntington's Victoria is a sustainable organization
Find out more about Huntington's Victoria