Carers and Families

This information is for carers, families and friends of people who have been diagnosed with Huntington’s Disease. We will keep adding useful links and information so keep coming back to this page for more information and support.

» Fact Sheets
General information about HD, caring for a person with HD, driving and transport, accommodation and support services

» Books and DVDs for loan
Huntington’s Victoria has a range of books and videos/DVDs available for loan.

» Family stories
Stories about living with HD; Tell your story

» Need to talk?
Contact us by phone or email, or chat online.

» Newsletters
Read the latest quarterly newsletter

» Latest News and Events
Keep informed about local events, meetings, social gatherings and conferences.

Other websites

The Huntington Society of Canada has several downloadable guides.

Understanding Behaviour in Huntington’s Disease: A practical Guide

A Caregiver’s Handbook for Advance Stage Huntington’s Disease

Learning about HD-A Childs Response

Genetic Testing for Huntington Disease

Personal Perspectives on Genetic Testing for Huntington Disease

Juvenile HD: A Resource for Families, Health Professionals and Caregivers

Loss and Grief – Coping with the Death of a Loved One and with Other Losses related to Huntington’s Disease

The Stanford University Hopes website provides information on HD for the lay person. It includes excellent short videos, and online books for children.