A person who has a parent with HD has a 50% chance of inheriting the HD gene. This means that out of every 100 children born to a parent with the HD gene, 50 will inherit the faulty gene. This is described as being ‘at risk’ of developing HD. A gene test is available which allows a person at risk to find out if they carry the faulty HD gene and will someday develop the disease. The test cannot determine when the symptoms of the disease will begin or how severe the symptoms will be. People whose test result shows that they carry the faulty gene are described as “gene positive.”

This information is for people who are at risk of inheriting Huntington’s Disease, or who are gene positive.

» Fact sheets
General information about HD, Huntington’s Victoria and other specialist services

» Books and DVDs for loan
Huntington’s Victoria has a range of books and videos/DVDs available for loan.

» Family stories
Stories about living with HD; Tell your story

» Need to talk?
Contact us by phone or email, or chat online.

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» Latest News and Events
Keep informed about local events, meetings, social gatherings and conferences.

Other websites

The Huntington Society of Canada has a downloadable guide to genetic testing
Genetic Testing for Huntington Disease
Personal Perspectives on Genetic Testing for Huntington Disease

Stanford University Hopes website provides information on HD for the lay person. It includes excellent short videos, and online books for children.