This information is for young people who want to learn more about Huntington’s Disease.

» Fact sheets
Information about HD, predictive testing and Huntington’s Victoria services.

» Family stories
Stories about living with HD; Tell your story

» Need to talk?
Contact us by phone or email, or chat online

» Newsletters
Read the latest quarterly newsletter

» Latest News and Events
Keep informed about local events, meetings, social gatherings and conferences.

Other websites

The Huntington Society of Canada has some downloadable information and advice on understanding HD and genetic testing

Loss and Grief – Coping with the Death of a Loved One
Understanding Behaviour in Huntington’s Disease
A Caregiver’s Handbook for Advance Stage Huntington’s Disease
Learning about HD - A Childs Response
Genetic Testing for Huntington Disease
Personal Perspectives on Genetic Testing for Huntington Disease
Juvenile HD: A Resource for Families, Health Professionals

Youthbeyondblue website gives advice on ways to recognise depression and how to talk about it, and to let young people know what services are out there to help.

Stanford University Hopes website provides information on HD for the lay person. It includes excellent short videos